Friends with Spina Bifida

One thing I really want people to understand about Spina Bifida is that it does NOT describe a person. It's a diagnosis, yes, but it really doesn't tell you that much about an individual. Not only do people with Spina Bifida have a large range of ability levels but they also have unique personalities and lifestyles--you know, like everybody else in the world. Because of that, one of my favorite things to do is read other SB mom blogs (some dads post, too, I guess) to learn about individuals who happen to have Spina Bifida. Some of their stories have similarities to mine, but all of their stories are unique.

Here are just a few links to my friends with Spina Bifida who I've learned about so far:

Davey & Maggie
Get Used to the Stairs
Jacob
Lance, Nicole, and Jacob
Ruth
Ruth's Story
Nate
Choo Choos and TuTus
Charlotte
Weir Together Forever
Caleb
Beyond Measure
Madi
A Worthy Journey
Andrew
Andrew's Journey

10 comments:

  1. I am an adult living-- and thriving with spina bifida. I'm also a blogger by trade. I'd love to connect with you! My blog is http://holdinoutforahero.org. :)


    --Laurita

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  2. I am an adult living with spina bifida, recently I decided to blog about my journey. My blog is http://iammorethanjustdamagedgoods.com

    Best Regards
    Chad


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  3. Thanks for including Caleb! We love our online SB family. :)

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  5. I am a 43year old female with Spina Bifida. I use a wheelchair and in my young days I used to use braces and crutches. i dont let anything get me down. I live with my boyfriend who has kidney failure. we have been together 16 years. we have 5 dogs and 2 cats. I used to be a people greeter at 2 different walmarts. I had to quit December 20,2014 because my doctor told me i had thinning bones and i felt like i had to tiptoe around myself. So now I am a stay at home mom to my FURKIDS and i wouldnt change anything for the world. I do the get paid to do surveys and i also have a website on facebook cindy fox and a page called petclouds by cindy. i make dog beds to sell. i enjoy crafts and meeting new people

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  6. i'm a 20 year old female with spina bifida. i use callipers and crutches to move around. eventough i face challenges every single day but that doesn't stop me from achieving success in life. i have great parents and friends who support me in every phase of my life. in life, we human beings are always given 2 choices by god, which is to be angry with what we don't have or to be grateful for what we do have. i have decided to go for the second choice. god created me in this way for a purpose. i will definitely find out what the purpose is. i'm going to join university to study degree end of this year. very soon i'm going to create a blog to share my story.

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  7. ilike your enthusiasm and great goals. I too have Spina Bifida and would like to meet more people with this. I am on facebook under Cindy Fox if anyone with this wants to friend me.

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  8. I have one more blog to add.

    http://www.whatdoyoudodear.com.

    It's about Spina Bifida too.

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  9. Our son Ronnie has Spina Bifida but he, with his little Teddy called Biffy, have battled through numerous hospital visits, he is our little Spina Warrior. Today, we count ourselves lucky with Ronnie's progress but it hasn't always been that way. At the 28 week mark during Sarah's pregnancy (Ronnie's doting mum) we were planning for the worst outcome imaginable for any parent. To lose him was a real fear that we were reminded of with every hospital appointment but we decided to give our unborn son a chance when the odds were stacked against him and of course us.

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