Friends with Spina Bifida

One thing I really want people to understand about Spina Bifida is that it does NOT describe a person. It's a diagnosis, yes, but it really doesn't tell you that much about an individual. Not only do people with Spina Bifida have a large range of ability levels but they also have unique personalities and lifestyles--you know, like everybody else in the world. Because of that, one of my favorite things to do is read other SB mom blogs (some dads post, too, I guess) to learn about individuals who happen to have Spina Bifida. Some of their stories have similarities to mine, but all of their stories are unique.

Here are just a few links to my friends with Spina Bifida who I've learned about so far:

Davey & Maggie
Get Used to the Stairs
Jacob
Lance, Nicole, and Jacob
Ruth
Ruth's Story
Nate
Choo Choos and TuTus
Charlotte
Weir Together Forever
Caleb
Beyond Measure
Madi
A Worthy Journey
Andrew
Andrew's Journey

10 comments:

  1. I and my daughter suffers from spina bifida. We are living in Turkey.
    We also have problems in orthopedic and urologic.
    I wish you all heathful. We also have a forum on our website.
    http://www.spinabifidaturkey.com

    ReplyDelete
  2. I am an adult living-- and thriving with spina bifida. I'm also a blogger by trade. I'd love to connect with you! My blog is http://holdinoutforahero.org. :)


    --Laurita

    ReplyDelete
  3. I am an adult living with spina bifida, recently I decided to blog about my journey. My blog is http://iammorethanjustdamagedgoods.com

    Best Regards
    Chad


    ReplyDelete
  4. Thanks for including Caleb! We love our online SB family. :)

    ReplyDelete
  5. Hello! My name is Kendall Waltz and I am 14 years old. I made a LEGO project on LEGO ideas called, “Service Dogs, Wheelchairs, and Walkers.” I need to get 10,000 votes in 365 days (but I plan on getting them before that!) on my page which shows pictures and details of my creation. Once I get the votes, LEGO looks at my idea and then decides if it should be made into a real set that people could buy! I get 1% of the profit which I am going to donate to my service dog fund. I am trying to raise enough money to have a service dog placed with a child through 4 Paws for Ability. I want to help a child get a seizure alert/assistance dog. I am also selling bracelets on this site called Bravelets where for every bracelet sold through my page, $10 gets donated! My set includes wheelchairs, a walker, and multiple service dogs. It also includes a WCMX wheelchair and ramp. I really wanted to have everyone feel included while playing LEGO and thought this was a great way to do that. Could you please vote for my project and share this? I really appreciate it. I would also love any feedback you ca give me so I know what you like and how we can improve.
    Here are the links:
    LEGO set:
    Bravelets page: https://www.bravelets.com/bravepage/service-dogs-support
    Facebook for Kendall’s Service Dog Support where I share lots of cool information about service dogs: https://www.facebook.com/KendallServiceDogSupport
    Thank you!
    Kendall

    ReplyDelete
  6. I am a 43year old female with Spina Bifida. I use a wheelchair and in my young days I used to use braces and crutches. i dont let anything get me down. I live with my boyfriend who has kidney failure. we have been together 16 years. we have 5 dogs and 2 cats. I used to be a people greeter at 2 different walmarts. I had to quit December 20,2014 because my doctor told me i had thinning bones and i felt like i had to tiptoe around myself. So now I am a stay at home mom to my FURKIDS and i wouldnt change anything for the world. I do the get paid to do surveys and i also have a website on facebook cindy fox and a page called petclouds by cindy. i make dog beds to sell. i enjoy crafts and meeting new people

    ReplyDelete
  7. i'm a 20 year old female with spina bifida. i use callipers and crutches to move around. eventough i face challenges every single day but that doesn't stop me from achieving success in life. i have great parents and friends who support me in every phase of my life. in life, we human beings are always given 2 choices by god, which is to be angry with what we don't have or to be grateful for what we do have. i have decided to go for the second choice. god created me in this way for a purpose. i will definitely find out what the purpose is. i'm going to join university to study degree end of this year. very soon i'm going to create a blog to share my story.

    ReplyDelete
  8. ilike your enthusiasm and great goals. I too have Spina Bifida and would like to meet more people with this. I am on facebook under Cindy Fox if anyone with this wants to friend me.

    ReplyDelete
  9. I have one more blog to add.

    http://www.whatdoyoudodear.com.

    It's about Spina Bifida too.

    ReplyDelete