The hardest part of clinic is that it can last all day depending on which specialists you need to see and what procedures need to be done. This time we had 3 hours of doctor visits, one hour of a bladder study, a 2 hour break, and then a 30 minute renal ultrasound. We met with genetics, social work, physical therapy, occupational therapy, neurosurgery, urology, dietetics, and a nurse practitioner. (Orthopedics and neurology were not there) Most of them didn't say anything blog-worthy. Evan was a rockstar!
|The iPad camera was an excellent distraction in between doctors|
|Waiting for the VCMG|
|Lunch break! Oh, how I love the memories of hospital food|
|After 7 hours at the hospital, Evan finally crashed|
Evan's current display of heterotopia seems to be somewhere in between. He has high muscle tone and is typically very rigid in his upper body. His hands also tend to be fisted. Some of his fine motor movements resemble someone with cerebral palsy. Chances are his fine motor challenges are caused by the heterotopia and we should be able to work through this as Evan continues to grow. For now we're going to increase his therapy and monitor him closely with neurology.
I'm not really worried about these findings. It's actually exciting for me to learn more about the brain and how it relates to some of Evan's behaviors. I have a CD of Evan's fetal MRI images which I'll share as soon as I can find it...Who gets to see real images of their child's brain?!